Stories for people affected by MS, by people affected by MS.
MS is different for everyone - we hope this blog reflects this.
I met an old friend in Dublin for a pint at his local this week.
It was important for me, after I had to leave my former career due to multiple sclerosis, to try to stay active and engaged in the community around me. So much of my former life seemed to be connected to “what I did” that it was a pretty tough transition for me.
My MS seems to be at new level and it's time to consider disease modifying drugs. It's been a frustrating month, even if it hadn't been for all the snow. I haven't been able to drive my car or even walk on my own. Too much pain and numbness in my legs and feet and my balance is shot.
I live in South London. Plan: visit my friends in Bow, taking my wheelchair with me.
The one person who was firmly in my mind on the day I received my diagnosis of MS last year was my dad. Over three decades earlier, he died aged 35 from complications arising from his MS. We are bound by diagnosis but our situations could not be more different.
There may be no greater hidden and personally experienced symptom of multiple sclerosis than pain.
No one can experience it with us, others might not notice it (as they can weakness, speech issues, etc), and there's no obvious injury to which we can point and say, “It hurts because of that.”
I was always taught to be grateful for what I had been given. It was only in later life that I realised that this goes for everything (not just food)! There is always a positive slant we can put on things, and it’s much healthier for us than than dwelling on the bad stuff.
It's a bit of a shock when you are suddenly not as mobile as you once were. You have to change your whole way of life. I used to thrive on speeding from one project to another and always running to a tight schedule.