Community blog
Stories for people affected by MS, by people affected by MS.
MS is different for everyone - we hope this blog reflects this.
Posts in Families and carers
Sophie's story: life after caring
Posted on 13 Jun 2013 at 8:00AM by Eleanor BrownSophie is 25 and lives in London. For most of her life, she provided care for her mother who had MS. As part of Carers Week she shares her story, and talks about how she’s been shaped by the experience.
In January this year my mother died of bladder cancer. She had also had a long fight with MS, having been diagnosed in 1975. She was only 64 when she died.
Emily's story: coming to terms with caring
Posted on 05 Jun 2013 at 4:29PM by Eleanor Brown
Emily’s dad was diagnosed with MS when she was 4. She’s been his carer since 14 when his condition deteriorated. As part of Carers Week, Emily shares her story.
Carers Rights Day: getting the support carers deserve
Posted on 30 Nov 2012 at 2:57PM by Natjo211
Today is Carers Rights Day, organised by Carers UK to get information to those who have a caring role.
My Mum's got MS
Posted on 22 Aug 2012 at 10:31AM by pinknsparkly
"My Mum's got MS."
Hearing my five year old say these words to his Granny was one of the darkest moments of my diagnosis.
He really hadn’t a clue what it was, or what it entailed, only that it was making his Mum extremely poorly and unable to care for him.
Transitions
Posted on 07 Aug 2012 at 1:59PM by pinknsparkly
This month has been a really tough one for me. I should say for us, as a family, but I am being self-indulgent and feeling the change is mine alone.
Our youngest son has left primary school. This should be an exciting transition for him, and us, but I’m feeling quite sad and redundant about it.
So who counts as a carer?
Posted on 22 Jun 2012 at 9:34AM by MikeCA
I’m sure, in church, I heard her make a vow to remain a faithful partner, "in sickness and in health,” all those years ago.
Like anything, if we could have predicted the future, perhaps it might have been different. I’m pretty sure, like me, she didn’t expect our lives to turn out quite the way they have.
My trip to the House of Lords
Posted on 20 Jun 2012 at 4:41PM by SarahThomas1994
On Tuesday 19 June Baroness Pitkeathley of Caversham sponsored the Carers Week 2012 Parliamentary Reception in the River Room at the House of Lords.
Donna's blog - in sickness and in health
Posted on 19 Jun 2012 at 4:51PM by pinknsparkly
In sickness and in health... well, I guess I took that one a bit literally?
Unsung heroes
Posted on 18 Jun 2012 at 4:50PM by tartan_miss
‘I get by with a little help from my friends’ is so true!
When thinking of carers, we generally don’t think of the people who help so much by doing little things when they’re really needed. Instead, we think of people who spend all day, or several hours a day with a person.
Michael's blog - life as a husband, father, carer and student!
Posted on 19 Oct 2011 at 12:39PM by Grievsonm
Michael is 32 and his wife Julie has secondary progressive MS. They have a daughter, Alice Rose, who is 2 years old.
Welcome to my first blog. I thought I’d start by sharing some details about myself and what I hope to get out of writing a blog for you.
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