Stories for people affected by MS, by people affected by MS.
MS is different for everyone - we hope this blog reflects this.
Posts in Families and carers
Sophie is 25 and lives in London. For most of her life, she provided care for her mother who had MS. As part of Carers Week she shares her story, and talks about how she’s been shaped by the experience.
In January this year my mother died of bladder cancer. She had also had a long fight with MS, having been diagnosed in 1975. She was only 64 when she died.
Today is Carers Rights Day, organised by Carers UK to get information to those who have a caring role.
"My Mum's got MS."
Hearing my five year old say these words to his Granny was one of the darkest moments of my diagnosis.
He really hadn’t a clue what it was, or what it entailed, only that it was making his Mum extremely poorly and unable to care for him.
This month has been a really tough one for me. I should say for us, as a family, but I am being self-indulgent and feeling the change is mine alone.
Our youngest son has left primary school. This should be an exciting transition for him, and us, but I’m feeling quite sad and redundant about it.
I’m sure, in church, I heard her make a vow to remain a faithful partner, "in sickness and in health,” all those years ago.
Like anything, if we could have predicted the future, perhaps it might have been different. I’m pretty sure, like me, she didn’t expect our lives to turn out quite the way they have.
On Tuesday 19 June Baroness Pitkeathley of Caversham sponsored the Carers Week 2012 Parliamentary Reception in the River Room at the House of Lords.
In sickness and in health... well, I guess I took that one a bit literally?
‘I get by with a little help from my friends’ is so true!
When thinking of carers, we generally don’t think of the people who help so much by doing little things when they’re really needed. Instead, we think of people who spend all day, or several hours a day with a person.