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Planning end of life care

Everyone with MS has the right to make choices about the care they receive now, as well as in the future.

People severely affected by MS might have trouble with this. Speech difficulties, fatigue or memory problems can make it hard for them to express their wishes.

If the person with MS has never talked to their family or healthcare team about what they want to do or if those wishes have not been taken into account legally, decisions might be taken by healthcare professionals alone.

So, it’s a good idea to talk about these issues well in advance.

A decision needs to be made as to whether hospital is the best place for care or whether the person with MS would choose to remain at home or prefer another less 'acute' care setting, such as a hospice.

The Mental Capacity Act 2005 means everyone has the right to decide what care they receive now and in the future. For full details, go to the Ministry of Justice website. In Scotland the equivalent law is the Adults with Incapacity (Scotland) Act 2000. More information is available on the Care Information Scotland website.

For more detailed information, download our MS Essentials publication Support and planning ahead.

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