Welfare support is vital for many people with MS. It helps us manage the extra costs of the condition, stay in work for longer and participate fully in society.
But our welfare system often ignores invisible symptoms like pain and fatigue and doesn't recognise how MS symptoms fluctuate.
The assessment criteria for PIP fail to capture the difficulties people face. And benefits assessors don't always take evidence provided by professionals into account. Too often people with MS are under pressure to repeatedly prove they need support.
Campaign to make welfare make sense
We're calling on the next UK government to make welfare make sense for people with MS. That means:
- changes to assessment criteria, like the 20 metre rule, so they reflect the barriers faced by people with MS.
- disability benefits assessments that take into account the fluctuating and hidden symptoms of MS and their impact.
- a disability benefits system that takes account of evidence from experienced professionals who understand each person’s condition.
- people with MS can rely on support when they need it, without unnecessary burden, or constant fear of having it taken away.
We're stronger when we speak up together. Sign our open letter to add your voice.
September 2015 We launched MS: Enough with a petition and video asking 'Does Emma need benefits?'
Does Emma need benefits?
Life with MS can be full of challenges. that benefits assessments don't capture.
We launched MS: Enough to show the reality of life with MS. Hear an audio described version of Does Emma need benefits? on YouTube.
November 2015 We met with the then Minister for Disabled People, Justin Tomlinson MP, to talk about why having MS is enough.
March 2016 The government announced changes to PIP assessment scoring that would leave some people with MS £150 worse off each week. Together with other charities, we secured a full government U-turn. More than 22,000 signed our MS: Enough petition. Over a single weekend 3,000 of us emailed your MPs, calling for an emergency debate on the issue.
November 2016 More than 90 MPs signed our pledge to support people with MS getting the support they need to stay in work.
May and June 2017 Before the 2017 general election, more than 16,500 of us signed a letter to party leaders asking them for no further cuts to disability benefits.
October 2018 We published figures from the Department for Work and Pensions on PIP, which showed nearly one in three new PIP claims made by people with MS are rejected.
June 2018 We launched a new phase of the campaign to scrap the PIP 20 metre rule. Under DLA (Disability Living Allowance) the rule was 50 metres. This reduction led to thousands of people with MS having their mobility support cut. More than 36,000 of us spoke up and we launched a new report highlighting the damaging impact of the 20m rule on people with MS.
Scrap the PIP 20 metre rule
The 20 metre rule is one of the many things about the PIP assessment that doesn't make sense. Our video shows how it's failing people with MS.
June 2018 The UK Government announced that people receiving the higher rates of PIP and whose condition is unlikely to improve would no longer have to be repeatedly reassessed, instead undergoing an occasional light-touch review.
October 2018 We handed in our 20 metre rule petition to the UK Government and installed our PIPville stunt outside the Houses of Parliament.
December 2018 We highlighted that people with MS win 83% of their appeals on PIP – as the UK Government wastes almost £1 million trying to stop them
April 2019 We published research showing the PIP 20 metre rule isn't only failing people with MS, it also costs the UK Government millions more than it will save. Over 8,000 of us emailed the then Work and Pensions Secretary Amber Rudd MP to call for the rule to be scrapped as part of the Government’s next spending review.
November 2019 Research with our MS community shows PIP assessments are failing people with MS. Together we've launched an open letter to the next UK government calling for common sense changes to the process.
Add your voice
We're strongest when we speak up together.
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