Campaigns in Wales
Access to treatments in Wales
In Wales, there are 12 disease modifying therapies (DMTs) available on the NHS for people with relapsing MS. However, our recent survey showed that only 49% of people from Wales who could potentially benefit from taking a DMT are doing so.
We're very concerned about the lack of infrastructure in Wales to cope with existing treatments, and with new treatments that are in the pipeline for progressive forms of MS.
People with MS in Wales are experiencing lengthy delays in accessing vital treatments. This shouldn't be happening. We're working closely with people living with MS and MS specialists in Wales to take the issue to local Health Boards and the Welsh Government.
Join our Campaigns Community and help us make a real difference for everyone living with MS in Wales.Read more about how we're campaigning for access to treatments across the UK
Social care in Wales
Our 2016 survey found that over 40% of people living with MS in Wales have received only some or no support, but had needed to. When asked about who provided care, most people (86%) said that friends and family provided some degree of unpaid support for practical tasks.
In 2017 we spoke to people living with MS from all over Wales about their care. Following this, we submitted evidence to the Parliamentary Review of Health and Social Care in Wales.
Share your voice on social care
The Social Services and Well-being (Wales) Act has been law in Wales since April 2016. This Act aims to transform the way that social services are delivered in Wales. It contains important new legal rights for people who use the services.
The Wales Neurological Alliance is looking for your views on social care in Wales, to see if the Act is making a difference and what more needs to be done.
You can share your views by filling in this short survey.
For more information please contact Fiona McDonald
Social care support in Wales
Local Authorities in Wales have a responsibility to assess the needs of everyone who needs care and support, including carers. If you need an assessment or have had difficulties in accessing support, please contact our team.
Making the welfare system make sense
The disability benefits system is not making sense for people with MS. Many people find the process of claiming benefits stressful, and assessments aren't adequately capturing the effect of hidden and fluctuating symptoms.
Across the UK, our MS:Enough campaign is calling on the UK government to make welfare make sense. Welfare is not a devolved matter, but there is still a lot we can do in Wales to influence the UK government.
Share your experiences of benefit assessments with our Welsh team, and help us influence the DWP and UK government to make the system work better.
For more information please contact our Policy, Press and Campaigns Manager, Fiona McDonald